I have started a new blog related to our journey related to Heidi's affliction.
the new blog address is: http://alschronicle.blogspot.com.
It essentially starts at the beginning of our trip down the medical road going back to the Spring of 06, and goes from there.
Not as fun as a blog about an extended trip to Hawaii, but if you are afflicted or know someone that is afflicted with ALS, Chronic Lyme Disease, Chronic Fatigue syndrome, Gulf War Syndrome or other MND's (motor neuron diseases) with no cure, then it might be an interesting read for you to see what we have gone through and maybe get some ideas.
Best,
Bill
Monday, January 26, 2009
Wednesday, December 31, 2008
New Blog as I close out this one
Everyone, we embarked on this trip about a year ago, and i've not updated this blog in a while.
We are about to go to the Mayo clinic in MN to see if anyone there can help Heidi, so I am starting a new blog to chronicle that trip as well as add some stories that we have been through over the past two years since Heidi's ALS diagnosis. While not as "fun" as this Hawaii trip was, i'm hopeful that we'll find some answers and maybe a way to stop her declining health.
the URL for the new blog is: http://mayomecca.blogspot.com
Hope to see you there.
We are about to go to the Mayo clinic in MN to see if anyone there can help Heidi, so I am starting a new blog to chronicle that trip as well as add some stories that we have been through over the past two years since Heidi's ALS diagnosis. While not as "fun" as this Hawaii trip was, i'm hopeful that we'll find some answers and maybe a way to stop her declining health.
the URL for the new blog is: http://mayomecca.blogspot.com
Hope to see you there.
Thursday, April 3, 2008
Back for a week now...
Hi all, we have been back in Colorado for a week now. Just getting settled in. We arrived at midnight last tuesday and then on Wednesday night at 2:30 in the morning, Heidi's sisiter, her husband, their 4 boys aged 13-8 and a their one year old baby girls showed up for 5 nights. Talk about having to get over your jet lag quickly!
All in all, the visit went very well actually. Really enjoyed seeing them. I wish I was not so busy getting settled in, because they had some good times. They went up to our mountain place and played in the snow one day and then went indoor skydiving the next. Sounded like a blast!
So, we are settling back in finally. I'm not sure about the future of the blog. I will post some of the newer Hawaii photos on my facebook page soon. You should be able to access that whether you have a facbook account or not here: http://www.facebook.com/profile.php?id=558391751
Cheers,
B.
All in all, the visit went very well actually. Really enjoyed seeing them. I wish I was not so busy getting settled in, because they had some good times. They went up to our mountain place and played in the snow one day and then went indoor skydiving the next. Sounded like a blast!
So, we are settling back in finally. I'm not sure about the future of the blog. I will post some of the newer Hawaii photos on my facebook page soon. You should be able to access that whether you have a facbook account or not here: http://www.facebook.com/profile.php?id=558391751
Cheers,
B.
Wednesday, March 26, 2008
Quick update: March 26
Hi All,
We are back in CO and I have put a brief post up on the other blog:
http://sedgtrip.blogspot.com
Will get some new photos up ASAP.
Best,
Bill
We are back in CO and I have put a brief post up on the other blog:
http://sedgtrip.blogspot.com
Will get some new photos up ASAP.
Best,
Bill
Friday, March 7, 2008
Friday night lights
The lights are the stars...man are they out tonight!
We grilled some teriyaki swordfish the other night on the beach. It was great! I forgot to tell shelby that you REALLY need to keep the spatula out of the sand, and when I let her flip one of the filets, well, let's just say it got a bit gritty. Oh well. It was fun to build the fire on the beach and hang out out there at night.
My surfing yesterday left alot to be desired. The waves did not seem to cooperate and were breaking everywhere I was not, and the wind picked up and kept blowing me down the beach, so I spent most of my time "getting a good shoulder workout." I actually ALMOST caught a wave on my first try and that was as close as I came. It was fun though and made me want to keep trying.
Really looking forward to the next few days. More fishing, waves, bbq's and next Saturday a trip over to Kauai. Peace.
B.
We grilled some teriyaki swordfish the other night on the beach. It was great! I forgot to tell shelby that you REALLY need to keep the spatula out of the sand, and when I let her flip one of the filets, well, let's just say it got a bit gritty. Oh well. It was fun to build the fire on the beach and hang out out there at night.
My surfing yesterday left alot to be desired. The waves did not seem to cooperate and were breaking everywhere I was not, and the wind picked up and kept blowing me down the beach, so I spent most of my time "getting a good shoulder workout." I actually ALMOST caught a wave on my first try and that was as close as I came. It was fun though and made me want to keep trying.
Really looking forward to the next few days. More fishing, waves, bbq's and next Saturday a trip over to Kauai. Peace.
B.
Saturday, March 1, 2008
Finally decided to get a golf cart.
All, since the neighborhood golf cart craze had been spreading like a rash, i have finally succumbed since I found a golf cart that is big enough and bad enough to represent.
I found this little beauty on the road between Honoka'a and Wiamea. I am going to name it "Little BigFoot" and will proceed to crush any other golfcart in my path in the 4th of July parade.
Yea! Baby! YEA! B.
I found this little beauty on the road between Honoka'a and Wiamea. I am going to name it "Little BigFoot" and will proceed to crush any other golfcart in my path in the 4th of July parade.
Yea! Baby! YEA! B.
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